Ok. Let’s be real about Addison’s Disease for a second.
It’s ok to not feel ok.
It’s also ok to tell people you’re not feeling ok.
If you’ve just recently been diagnosed with Addison’s Disease you’re probably spending a substantial amount of time learning about the disease. You’re learning about what may have caused the disease. FYI, there’s not a clear answer to that…
You’re also learning about Addison’s disease symptoms. You’re learning about treatment options and different supplements that you may need to take to lead a fulfilled life. While you are consuming all of this information, share it with your closest friends and family members.
Sharing is caring!
When you are diagnosed with Addison’s you take on a burden. The more people that are in your “circle” that understand what you are going through, the better! There are a few key things that those that are closest to you MUST KNOW.
This could save your life one day – share with your friends/family
- Write down your daily dosing regimen and put it up in your medicine cabinet. Tell your spouse or closest friend where you keep that information. Addison’s or not, EVERYONE gets sick, and the odds are very high that you will get sick at some point in time. You will need someone to help take care of you.
- Buy a journal. At the end of each day, write down any great or not so great feelings you felt that day. It’s also helpful to write down any big events you have coming up. You’ll have days when you don’t feel so hot. Having the ability to look back on your entries in the journal will give you future clarity on when you should up-dose your Aldosterone, Cortisol, and any additional medicine or supplements you are taking.
- Visit your nearest Fire Station. Talk with them about your disease, and let them know that you live in the area and require special treatment. You may or may not have a solu-cortef injection kit. If you do, let the fire station know. Let your friends know you have the pen too, and teach them how to administer the medicine if you need it.
Why/How does sharing this list with friends/family help you?
If your friends and family know the steps you’ve taken to make sure you are getting the health support you need, they will have a better understanding of how serious Addison’s Disease can be.
Sharing with friends will also give you the opportunity to wake up one day and not feel ok. Instead of feeling all alone, you can call your friend and say
“heyyyy…. remember those symptoms we read about? Well, today I’m experiencing insert symptom here and I need your love/friendship.”
You don’t have to take this on all alone. You have a support system, lean on them to help you through the bad days. That’s ok!
One last note… your health is the most important thing in the world to someone else besides you. Find that person. For my wife, I’m that person.
Her health trumps all in my world, and if she’s not feeling right, I want to know ASAP! It doesn’t matter how busy I am, or what I am dealing with at work, I want to know!
When you first find out that a loved one has Addison’s Disease it can be very scary. You’re reading about this rare disease and learning all of the terrible things that could happen. I totally understand how you feel, I’ve been there. I’m there now! My wife has Addison’s Disease. This isn’t about me though. This is about her. If I am reading and learning and have all of these scary feelings… how do you think the person that was diagnosed feels?
Your Number ONE Takeaway From This Post About Addison’s Disease
If you have a family or friend that has Addison’s Disease, do them a favor. Talk to them, ask them how they are feeling. Give them permission to have a tough time, and know that they can count on YOU when things are down.
It’s ok to not feel ok.