Researching Addison’s Disease
When a spouse or loved one is diagnosed with an ailment I am not familiar with, my first reaction is to Google it. I’m sure many of you have done the same. When my wife was diagnosed with Addison’s a little over a year ago I went down the rabbit hole and searched for hours on end. I wanted to find stories about people living with Addison’s Disease. I wanted to learn as much as I could about this rare disease so I could be better equipped to help my wife.
Through research, I learned about the symptoms, and the regimen of pills people take to treat Addison’s Disease. A lot of the information we found was overwhelming and very scary!
I also read numerous stories talking about life after Addison’s diagnosis, on Addison’s disease blogs much better than this one. Unfortunately, we struggled to find stories talking about people leading happy, fulfilling lives (the linked blog above is the best Addison’s Disease blog in my opinion). Many of the people that have been diagnosed with Addison’s Disease have also been diagnosed with other autoimmune diseases, which compounds the issues even further. I understand why people struggle with an Addison’s disease diagnosis. It is easy to let Addison’s win.
We advocate for counseling as soon as you can after diagnosis to help your mindset and the different emotions you’ll experience as you are trying to digest this new “normal”.
Second Chances: True Stories of Living with Addison’s Disease
During my quest for people leading fulfilled lives I came across this book on Amazon, and it truly was a blessing. Second Chances shares 16 stories about people living with Addison’s Disease. The book provided us with the insight we were searching for to better understand Addison’s disease. It brought sunshine to my cloudy mental state.
After reading “Second Chances: True Stories of Living With Addison’s Disease”, my mindset changed, and I was able to better understand how my wife was feeling, and be more compassionate for how she felt, especially when she was feeling down.
When my wife was diagnosed with Addison’s Disease, we knew there would be challenges. After reading Second Chances my mindset changed. I learned better ways to talk to my wife about how she was feeling. We are closer today than ever before because of the compassion Addison’s disease has taught me!
I highly recommend “Second Chances: True Stories of Living With Addison’s Disease”. It’s a great book for anyone that has been impacted by Addison’s Disease.
If you’ve read this book, or have recommendations for other books we should read, we would love to hear from you! Please leave a note for us in the comments.